Specialty Pharmacy Helps Manage Rare Disease- Celebrating Rare Disease Day

Published On: February 9th, 2023Categories: Patients, Services, Specialty, Uncategorized

Rare Disease Day is celebrated on February 28 and is a time to raise awareness about rare diseases and the people living with them. Rare disease affects fewer than 200,000 people in the United States. Living with a rare disease can bring profound challenges, especially when it comes to getting an accurate diagnosis and finding effective treatment options. Most rare diseases have no cure and individuals with rare diseases may face challenges that are different from those experienced in more common medical conditions. A patient living with a rare disease has less information, fewer resources, and more obstacles to accessing the right treatment. Physicians who are familiar with rare diseases may struggle to identify them accurately, making diagnosis a process of missed opportunities and delays. 

Rare Disease Treatment

Receiving the news you have been diagnosed with a rare disease can be emotionally devastating and treatment options may be limited. You may be prescribed a specialty medication that is specifically designed to treat your rare disease. Specialty medications may only be available at a limited number of pharmacies and typically come with additional guidelines and regulations to ensure patient safety. Specialty pharmacies, unlike regular pharmacies, have extensive knowledge of medicines used to treat rare conditions and are better equipped to provide counseling and support services to patients. In addition, pharmacists at specialty pharmacies typically have more experience with these types of medications and can offer valuable insights into their use. Having access to specialty medications used to treat rare disease conditions can be a time-consuming process, but specialty pharmacies like PFSP offer support services to make this easier. When it comes to treating a rare disease, partnering with a reliable specialty pharmacy adds an invaluable layer of experience and expertise.

How Specialty Pharmacy Helps Patients 

Specialty pharmacists are familiar with both the diagnosis and the medications used to treat rare diseases. In addition, they review each patient’s entire medication profile in order to detect any potential drug interactions as well as provide counseling on the drugs and their potential side effects. When compared with traditional retail pharmacies, specialty pharmacies offer a much higher level of patient care which is especially important when living with a rare disease. Rather than having minimal contact with a pharmacist at a retail pharmacy, when utilizing a specialty pharmacy like PFSP Specialty Pharmacy, patients benefit from personalized support throughout their entire treatment journey.

PFSP Specialty Pharmacy and Rare Disease Patients

At PFSP Specialty Pharmacy, we strive to provide superior specialty care and exceptional service for rare disease patients. Our experienced pharmacists understand your diagnosis and have expertise in specialty medications used to treat it. At PFSP Specialty Pharmacy, patients benefit from personalized care, along with an online patient portal where they can ask questions and access educational resources. Patients also receive continual communication, regular health checks, refill reminders, and treatment assistance from knowledgeable team members dedicated to helping patients manage their diagnoses effectively. Our experienced team also provides prior authorization (PA) assistance as well as help with finding financial assistance programs available. PFSP Specialty Pharmacy is devoted to helping patients manage their unique diagnoses effectively by providing clinical expertise and exceptional patient care so that they can achieve the best possible outcomes. Our pharmacists understand the individual needs of each patient living with a rare condition and help guide them through treatment protocols, maintain adherence, and prevent medication interruption. 

If you or a loved one has been diagnosed with a rare disease, working with a specialty pharmacy can make all the difference in managing your condition. Specialty pharmacies can provide counseling and support services, as well as practical advice on how to manage medications needed to treat your rare disease. The pharmacists at specialty pharmacies are highly knowledgeable about medications used for rare conditions and can offer valuable insights into their use. Ultimately, partnering with a specialty pharmacy is an essential part of managing a rare disease, and can help ensure the best patient outcomes.

PFSP Specialty Pharmacy provides patients and their physicians an exceptionally high standard of care with our growing team of specialized pharmacists and staff.  Our dedicated team of pharmacists focus on improving adherence for patients and work to find an approach that works best for them. Bringing a fresh take on what a Specialty Pharmacy can and should be, we are committed to the care of our patients.  We take pride in being an ethical resource within our community and strive each day to help our patients live enriching and full lives.