Giving Hope to Rare Disease Patients

Published On: February 15th, 2022Categories: Patients, Services, Specialty

In the U.S. it is estimated that 25-30 million Americans are living with a rare disease. With over 7,000 rare diseases, each disease may affect 200,000 people or fewer. The limited number of people affected by a disease makes finding medication and support challenging. Healthcare providers like PFSP Specialty Pharmacy have the experience and knowledge of how to support patients with a rare disease.

How Specialty Pharmacy Supports a Person with a Rare Disease

Specialty pharmacies work with a patient’s doctor to create a treatment plan that delivers the best results. A detailed consultation to discover a patient’s proposed medication plan, current medications, and over-the-counter supplements can help avoid any drug interactions a patient might incur. Specialty pharmacies focus on improving medication adherence by finding a treatment approach that works best for each patient and supports them through the process. Educating patients about their disease and what to expect from their treatment plan improves a patient’s adherence to a medication. Specialty Pharmacies may conduct health status assessments to ensure a positive response to treatment and address any adverse health effects head-on. And because specialty pharmacies can offer one-on-one specialty training, patients are more likely to overcome fear or apprehension about giving themselves an injection that might be needed for their rare disease medication.

Communication Between Patient and Pharmacist

To help patients manage a condition, specialty pharmacies communicate regularly between patients and their medical providers. Specialty pharmacists and technicians utilize patient text messaging and other technology to share information about medication, billing, and real-time data relevant to treatment management. Quality patient care and communication are key to medication adherence, which leads to more successful patient outcomes.

Is Financial Assistance Available for Rare Disease Medications?

Treating a rare disease should never be prohibited because of cost. Specialty pharmacies are trained to look for opportunities to save money and get the financial assistance needed to remove financial barriers. Specialty Pharmacies will work with a patient’s providers to coordinate the best coverage options. Additional financial programs or grants can be explored by a specialty pharmacies to make things easier for a patient and their family.

PFSP Specialty Pharmacy provides patients and their physicians an exceptionally high standard of care with our growing team of specialized pharmacists and staff. Our dedicated team of pharmacists focus on improving adherence for patients and work to find an approach that works best for them. Bringing a fresh take on what a Specialty Pharmacy can and should be, we are committed to the care of our patients. We take pride in being an ethical resource within our community and strive each day to help our patients live enriching and full lives.